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Rheumatoid Arthritis Unmasked: 10 Dangers of Rheumatoid Disease

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What if no one confused rheumatoid disease with just arthritis? What if the world understood that people with rheumatoid disease (RD) are not hypochondriacs because they have so many health problems? What if all of the effects of the disease were treated – not dismissed or ignored? Rheumatoid Arthritis Unmasked exposes the true nature of RD revealed in medical research. What if no one confused rheumatoid disease with just arthritis? What if the world understood that people with rheumatoid disease (RD) are not hypochondriacs because they have so many health problems? What if all of the effects of the disease were treated – not dismissed or ignored? Rheumatoid Arthritis Unmasked exposes the true nature of RD revealed in medical research. For about a decade, Kelly O’Neill Young has studied current and past academic research about RA, reading hundreds of journal articles for this book alone. Kelly, widely known as the RA Warrior, has also gained a unique perspective by listening to millions of visitors to her website and social network. Patients will be armed to fight against becoming a victim of the RD mortality gap Doctors will know how to better diagnose and treat RD Friends and family will understand that their loved one with RD has a serious disease Rheumatoid Arthritis Unmasked is more than a gripping account of the dangers of RD - it is a path for change. This book equips all RA warriors to guide their own medical care and safeguard their health. This book will arm you with facts that will save lives. “I admire deeply your ability to collect information, express feelings, write clearly and compelling, and point to why it matters. That’s what the best change agents do, and you’re tops.” e-patient Dave deBronkart EXCERPT FROM CHAPTER 1 One unfortunate effect of viewing the disease solely in terms of joint symptoms is the undocumented smoldering disease activity that takes place even in so-called “responders” to treatment. Nearly every patient I’ve met who has been told she is “in remission” experiences joint symptoms either regularly or in the form of periodic flares. Furthermore, I have observed several people who experienced serious extra-articular illness after long periods of treatment-induced joint-symptom “remission.” Likewise, an editorial by Harvard rheumatology investigator Daniel Solomon points out that even when medical treatment successfully improves joint symptoms, “patients with RA continue to suffer from a variety of extra-articular manifestations, including cardiovascular disease (CVD).”⁠1 Health care professionals are mainly aware that the disease affects hands, but other disease symptoms are less readily acknowledged, examined, or measured. While the disease is referred to as “a type of arthritis,”⁠2 it is difficult for people with rheumatoid disease to obtain appropriate medical attention for non-joint symptoms or for lesser-known “joints” such as vocal cords. Effective treatments do not yet exist to eliminate every disease effect in every patient. However, making health care workers, academics, and investigators aware of systemic disease effects is a necessary first step. Note: Excerpt provided since Amazon does not provide the “Look inside” feature during pre-orders of Kindle books. This book discusses rheumatoid arthritis symptoms that are beyond joints, often mistakenly thought of as rheumatoid arthritis complications. This is a rheumatoid arthritis guide like no other, a medical reference book for patients, medical students, and health professionals who care for rheumatoid arthritis patients. Most people understand rheumatoid arthritis / rheumatoid disease (RD) as an autoimmune disease that results in chronic pain in joints. However the notion of autoimmune arthritis is insufficient for RD since it usually limits perspective to the musculoskeletal disease only.


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What if no one confused rheumatoid disease with just arthritis? What if the world understood that people with rheumatoid disease (RD) are not hypochondriacs because they have so many health problems? What if all of the effects of the disease were treated – not dismissed or ignored? Rheumatoid Arthritis Unmasked exposes the true nature of RD revealed in medical research. What if no one confused rheumatoid disease with just arthritis? What if the world understood that people with rheumatoid disease (RD) are not hypochondriacs because they have so many health problems? What if all of the effects of the disease were treated – not dismissed or ignored? Rheumatoid Arthritis Unmasked exposes the true nature of RD revealed in medical research. For about a decade, Kelly O’Neill Young has studied current and past academic research about RA, reading hundreds of journal articles for this book alone. Kelly, widely known as the RA Warrior, has also gained a unique perspective by listening to millions of visitors to her website and social network. Patients will be armed to fight against becoming a victim of the RD mortality gap Doctors will know how to better diagnose and treat RD Friends and family will understand that their loved one with RD has a serious disease Rheumatoid Arthritis Unmasked is more than a gripping account of the dangers of RD - it is a path for change. This book equips all RA warriors to guide their own medical care and safeguard their health. This book will arm you with facts that will save lives. “I admire deeply your ability to collect information, express feelings, write clearly and compelling, and point to why it matters. That’s what the best change agents do, and you’re tops.” e-patient Dave deBronkart EXCERPT FROM CHAPTER 1 One unfortunate effect of viewing the disease solely in terms of joint symptoms is the undocumented smoldering disease activity that takes place even in so-called “responders” to treatment. Nearly every patient I’ve met who has been told she is “in remission” experiences joint symptoms either regularly or in the form of periodic flares. Furthermore, I have observed several people who experienced serious extra-articular illness after long periods of treatment-induced joint-symptom “remission.” Likewise, an editorial by Harvard rheumatology investigator Daniel Solomon points out that even when medical treatment successfully improves joint symptoms, “patients with RA continue to suffer from a variety of extra-articular manifestations, including cardiovascular disease (CVD).”⁠1 Health care professionals are mainly aware that the disease affects hands, but other disease symptoms are less readily acknowledged, examined, or measured. While the disease is referred to as “a type of arthritis,”⁠2 it is difficult for people with rheumatoid disease to obtain appropriate medical attention for non-joint symptoms or for lesser-known “joints” such as vocal cords. Effective treatments do not yet exist to eliminate every disease effect in every patient. However, making health care workers, academics, and investigators aware of systemic disease effects is a necessary first step. Note: Excerpt provided since Amazon does not provide the “Look inside” feature during pre-orders of Kindle books. This book discusses rheumatoid arthritis symptoms that are beyond joints, often mistakenly thought of as rheumatoid arthritis complications. This is a rheumatoid arthritis guide like no other, a medical reference book for patients, medical students, and health professionals who care for rheumatoid arthritis patients. Most people understand rheumatoid arthritis / rheumatoid disease (RD) as an autoimmune disease that results in chronic pain in joints. However the notion of autoimmune arthritis is insufficient for RD since it usually limits perspective to the musculoskeletal disease only.

30 review for Rheumatoid Arthritis Unmasked: 10 Dangers of Rheumatoid Disease

  1. 5 out of 5

    Madam J

    4.5 stars, but I won't round down because of my personal situation. This is one of the best researched and up-to-date books on the subject matter. It doesn't just apply to RA (though that is the focus of the research included), it is also very useful to anyone with an autoimmune disorder - as many of these dangers cross over the same way the diseases do (for example, I fluctuated with a diagnosis of psoriatic vs rheumatoid for a bit, but the treatments were identical, as were many of the symptoms 4.5 stars, but I won't round down because of my personal situation. This is one of the best researched and up-to-date books on the subject matter. It doesn't just apply to RA (though that is the focus of the research included), it is also very useful to anyone with an autoimmune disorder - as many of these dangers cross over the same way the diseases do (for example, I fluctuated with a diagnosis of psoriatic vs rheumatoid for a bit, but the treatments were identical, as were many of the symptoms and dangers.) My biggest concern with the book, despite my firm belief that Kelly has done a huge service the entire community, is that I have been 5+ years in this ongoing nonsensical and evil-spirited disease. I knew most of the future risks from excessive reading about it; Kelly has summarized it nicely here. So for someone like me, who already "knows" or "gets it", who has the day-to-day swings and various chronic symptoms, having such a wealth of real, solid, current research is a fabulous and much needed find. That being said, if I had grabbed this book when I was newly diagnosed, I fear I would have been damn near despondent. That is not Kelly fault and it does not change the reality and necessity of this information. The statistics are not great, but true. The dangers are terrifying, but true. What I'm telling you is: if you are newly diagnosed, I still believe you need to read this book, but your life is not over. The information in here will help you advocate for your plan of care, and be an active participant in your treatment, which you must be. But please, PLEASE, use this as positive tool - you have a road map and some realistic expectations, but you will soldier on. I hope she intends to update the book at least occasionally, because it is that much of a gem of a work. I am fortunate to have access to medical journals, etc. This book is a godsend for those who are not, and even if the chapters were identical with new studies provided, I'd buy it again. And I 100% agree the damn name should be changed from "arthritis". It's only one symptom of a complex disease, plus I'm so tired of people telling me "oh, I have arthritis in my shoulder, have you tried extra-strength Advil?". All my love to my fellow Rheumies. Get the book.

  2. 4 out of 5

    Penny Maroldo

    This book is a must read for all who suffer from Rheumatoid Disease, their doctors, nurses, families and friends. Bypennypiton October 30, 2017 Format: Kindle Edition|Verified Purchase This book is a must read for all who suffer from Rheumatoid Disease, their doctors, nurses, families and friends. This book is so overdue!! My thanks goes to a very brave and courageous, hard working and dedicated woman who has fought for so many years to tell the real story of Rheumatoid Disease. I have followed her This book is a must read for all who suffer from Rheumatoid Disease, their doctors, nurses, families and friends. Bypennypiton October 30, 2017 Format: Kindle Edition|Verified Purchase This book is a must read for all who suffer from Rheumatoid Disease, their doctors, nurses, families and friends. This book is so overdue!! My thanks goes to a very brave and courageous, hard working and dedicated woman who has fought for so many years to tell the real story of Rheumatoid Disease. I have followed her RA Warrior webpage and Facebook page for years. Now she has taken her dedication to a new level with this wonderful book. Untold hours of work and the accompanying pain have gone into making this the most complete and relevant book about Rheumatoid Arthritis I have ever read. Having suffered with RA for over 30 years, and as an RN doing my own research during that time, I have read many books about my disease. I know first hand that Kelly has truly unmasked this mysterious, insidious, unrelenting, excruciatingly painful disease for what it really is. She has the respect and love of so many who suffer along side her, but she also has the respect and encouragement of many in the medical community. If only every doctor, nurse, family member and friend of RA patients would read this book, the lives of millions could be changed for the better. I have recommended it to my rheumatologist and her staff.

  3. 5 out of 5

    Susan Bazzett-Griffith

    As a reader recently stuck in the limbo of figuring out an autoimmune diagnosis that is affecting my joints, I wanted to start educating myself on various possibilities of wtf is wrong with me/causing me to wake up in pain every morning. This book was both cheap in kindle amd I recognized the author's bame from hwr website RA Warrior, which I'd browsed some the day before. O'Neill-Young's book is informative and well reaearched and shows her passion for helping patients and the medical community As a reader recently stuck in the limbo of figuring out an autoimmune diagnosis that is affecting my joints, I wanted to start educating myself on various possibilities of wtf is wrong with me/causing me to wake up in pain every morning. This book was both cheap in kindle amd I recognized the author's bame from hwr website RA Warrior, which I'd browsed some the day before. O'Neill-Young's book is informative and well reaearched and shows her passion for helping patients and the medical community both find answers and take seriously the systemic issues involved in rheumatoid diseases beyond the arthritis factor. She advocates for changing the name of the disease, droppi g the word arthritis because it makes people unfamiliar with autoimmune aspecta of the disease unaware of the other dangerous meducal issues that come with the diagnosis and even gives doctors pause about seeing the disease in young people. Apparently with rheumatoid disease, early amd awidt diagnosis and treatment is a patient's best hope, yet it takes most medical communities years to make an accurate diagnosis for oatienta presenting a wide variety of symptoms. An excellent primer, but also pretty scary to read as someone who still is unsure if this could be the diagnosis I will ultimately be hearing once all the appointments and testing and waiting (and waiting for all of those things, one at a time...) is over. 4 stars.

  4. 4 out of 5

    Donna

    A Must Read for those Suffering or Caring for someone with RD Reading this book has been an eye opener for me! I was diagnosed with RA in 2012 and have read so many different articles my head aches. Although I am fortunate to have a very supportive family, I too have dealt with people looking at my hands and saying "you don't look like you have arthritis". It's frustrating and demeaning! After reading this book I would recommend every person with RD also read, have your family and friends read, g A Must Read for those Suffering or Caring for someone with RD Reading this book has been an eye opener for me! I was diagnosed with RA in 2012 and have read so many different articles my head aches. Although I am fortunate to have a very supportive family, I too have dealt with people looking at my hands and saying "you don't look like you have arthritis". It's frustrating and demeaning! After reading this book I would recommend every person with RD also read, have your family and friends read, get your doctor(s) to read this. I had so many "ah-ha" moments. As I stated I was diagnosed in 2012. This year my new Rheumatologist said she would guess I was symptomatic as far back as 2002. Now after reading the data Kelly has spent years compiling, I'm left wondering if my own disease doesn't go back even further. I can't urge you strongly enough to share this information. Become an advocate. Fight for our right to receive better medical care; more research dollars; fight for a cure! Help us, those with RD, get properly educated and get the real medical treatment we need to enjoy the quality of life most people take for granted.

  5. 5 out of 5

    Danielle Wever

    I was diagnosed with Rheumatoid disease in 2013. Since then I have lost the ability to do many of the things I love, and eventually making me unable to work, and had to leave my job of 10 years that I loved. For the past several years as I've struggled to cope with first recognizing myself how severe the disease can be, and also getting other people to not dismiss me. Limping around with my cane, I would have people ask me what was wrong. Saying "Rheumatoid Arthritis" I'd get oh my grandma has a I was diagnosed with Rheumatoid disease in 2013. Since then I have lost the ability to do many of the things I love, and eventually making me unable to work, and had to leave my job of 10 years that I loved. For the past several years as I've struggled to cope with first recognizing myself how severe the disease can be, and also getting other people to not dismiss me. Limping around with my cane, I would have people ask me what was wrong. Saying "Rheumatoid Arthritis" I'd get oh my grandma has arthritis, or have you tried xyz? Until eventually I just started telling people I have an autoimmune disease. I am grateful for this book. I had no idea that for 70 years patients and clinicians alike have been trying to change the name to reflect the disease. It has given me resources which I can hopefully share to get help for my non joint related symptoms being caused by this debilitating disease.

  6. 4 out of 5

    Kathryne

    RA Unmasked is a book that should be read by all people with Rheumatoid Disease and family members of people with Rheumatoid Disease as well as doctors and researchers. As an immunologist, I know the value of approaching research with full background knowledge of the subject of research. Without understanding the whole aspect of Rheumatoid Disease as a disease and not arthritis, research suffers. This book is not just for researchers though. This is an easy-to-read, well-written book about RD’s RA Unmasked is a book that should be read by all people with Rheumatoid Disease and family members of people with Rheumatoid Disease as well as doctors and researchers. As an immunologist, I know the value of approaching research with full background knowledge of the subject of research. Without understanding the whole aspect of Rheumatoid Disease as a disease and not arthritis, research suffers. This book is not just for researchers though. This is an easy-to-read, well-written book about RD’s effect on the whole body which makes the argument that the term Rheumatoid Arthritis is harmful to people with Rheumatoid Disease. While the author does have experience from her own life fighting RD, and has a wealth of information from countless interactions with other patients, doctors, and researchers, this book does not contain any new information or experiences. Rather, this book is a compilation of published research revealing RD as a systemic autoimmune disease that results in a mortality gap. It is my sincere hope that this book will convince you of the dangers of Rheumatoid Disease and the harm of the term Rheumatoid Arthritis.

  7. 5 out of 5

    Dori

    This book is backed by over 600 citations from medical journals, proving that the disease called Rheumatoid Arthritis is so much more than joint pain. As one of many patients who have heart and lung disease as a deadly counterpart to arthritis, I believe it is crucial that this book be read by the medical community. The author, Kelly O’Neil Young, must have taken years to compile all of this information. I commend her dedication, because it gives hope that patients presenting with symptoms other This book is backed by over 600 citations from medical journals, proving that the disease called Rheumatoid Arthritis is so much more than joint pain. As one of many patients who have heart and lung disease as a deadly counterpart to arthritis, I believe it is crucial that this book be read by the medical community. The author, Kelly O’Neil Young, must have taken years to compile all of this information. I commend her dedication, because it gives hope that patients presenting with symptoms other than the standard finger-joint inflammation will no longer be ignored. It is my hope that someday early-treatment will prevent the development of systemic lung, heart, and vascular issues which often lead to excess suffering and early death.

  8. 5 out of 5

    Tracy Farmer

    As a newly diagnosed patient, this book was very interesting and eye opening. I appreciate the honesty and extensive research Kelly has put into this book. We all need to be an informed patient and take control of our healthcare. Thanks for getting us the information we desperately need. I do have to admit some parts of this book was hard to read about the mortality and other aspects of this disease I had no idea about. Here's to hoping for a cure and better outlook for people living with this h As a newly diagnosed patient, this book was very interesting and eye opening. I appreciate the honesty and extensive research Kelly has put into this book. We all need to be an informed patient and take control of our healthcare. Thanks for getting us the information we desperately need. I do have to admit some parts of this book was hard to read about the mortality and other aspects of this disease I had no idea about. Here's to hoping for a cure and better outlook for people living with this horrible disease. I also hope this book sheds some light to the loved ones who have someone living with this disease.

  9. 4 out of 5

    Shanna

    This book is a must-read for patients, members of the medical community, and families/friends of people with Rheumatoid Disease. Through impeccable research and a vast number of references, Kelly O'Neill Young explains why patients and doctors need to be vigilant about the systemic dangers of this grossly misunderstood disease. This book is written in a manner that will appeal to anyone, from patients, to the medical community, to family and friends, and contains essential information.

  10. 4 out of 5

    Michele Pike

    This book is a must have for patients with RA/RD and medical providers. I have RD, and this book has given me many tools to be much more proactive in my medical care. This book is well researched, logical, and emphatic in its conclusions. RD is NOT well understood by most medical providers, much less the population in general. A name change from RA to RD will be a fundamental step in the right direction.

  11. 4 out of 5

    Lori

    FINALLY! This is a must read...I have been searching for a book like this since my diagnosis! It not only addresses the A word and how misinformed the public is to this disease, it provides credible research to offer reference for patients, the medical community, etc, Education is critical and with more awareness this book will save lives....

  12. 5 out of 5

    Bettie G

    In her quest to explain the reasons for a name change from Rheumatoid Arthritis to Rheumatoid Disease, the author has put together an amazing compilation of scientific studies, and personal experiences of life with RA. I feel this is a must read for anyone who suffers or cares for someone with Rheumatoid Arthritis.

  13. 5 out of 5

    Louise Warman

    A tough read but an essential one for anyone like me with Rheumatoid Disease, or who works in the field. This disease is so much more than just stiff and swollen joints, effecting the heart, lungs and the eyes amongst other organs, and is so misunderstood across the board. I shall now be slowly translating the bulk of the text into French for a better communication with my own rhumatologue.

  14. 5 out of 5

    Ardell Simon

    I found this book extremely useful, educational and a necessary read for those of us suffering with RD. It would be wonderful if the many medical doctors, nurses, family, coworkers & employers etc. would also take the time to read it. RD is one of the most misunderstood disease. I found this book extremely useful, educational and a necessary read for those of us suffering with RD. It would be wonderful if the many medical doctors, nurses, family, coworkers & employers etc. would also take the time to read it. RD is one of the most misunderstood disease.

  15. 4 out of 5

    Susan Mills

    A Thorough Examination of RA This sincere author tries to provide every single known fact about RA but the book is not too user- friendly to a reader who is seeking early answers. Researchers will find a treasure of references.

  16. 5 out of 5

    Tony

    Wow! This book finally tells the true story.

  17. 5 out of 5

    Claire

    When my primary doctor suggested I may have a rheumatoid condition after looking at my bloodwork, and submitted some paperwork to get it analysed by a rheumatologist (which scared the bejeebers out of my boyfriend as far as I could tell), I decided to calmly investigate this strange phenomenon on my own. How could this condition be affecting me? I decided whatever was happening was not dramatic; I will proceed with caution. What I found at my doctor's appointment is just a yellow flag. What I lea When my primary doctor suggested I may have a rheumatoid condition after looking at my bloodwork, and submitted some paperwork to get it analysed by a rheumatologist (which scared the bejeebers out of my boyfriend as far as I could tell), I decided to calmly investigate this strange phenomenon on my own. How could this condition be affecting me? I decided whatever was happening was not dramatic; I will proceed with caution. What I found at my doctor's appointment is just a yellow flag. What I learned from this book was that the term "rheumatoid arthritis" is an easy way to classify a whole bunch of related complex auto-immune diseases like interstitial lung disease, and a bunch of others that called to mind my previous research into the Japanese 1940's bombings and their related effects like when I was folding all the origami paper cranes I could. I think I have folded something around 5000 or so give or take to date. Oh wow, that recollection makes me like this book a lot better. So now I am much happier. Leave your mark however you can, even if it's just in paper cranes, right?

  18. 4 out of 5

    Kelly

  19. 5 out of 5

    Cindy

    This is a fantastic book. The best I've seen about Rheumatoid Disease. It's a must read for doctors, people who have this disease, and those who know people who have it. It may be difficult reading for some at times, but you won't be sorry, as you will come away with greater knowledge of the many variables of this disease and more compassion for those who have it. Kelly has done a remarkable job. I hope this book will be read by every general practitioner, family practice doctor, and rheumatolog This is a fantastic book. The best I've seen about Rheumatoid Disease. It's a must read for doctors, people who have this disease, and those who know people who have it. It may be difficult reading for some at times, but you won't be sorry, as you will come away with greater knowledge of the many variables of this disease and more compassion for those who have it. Kelly has done a remarkable job. I hope this book will be read by every general practitioner, family practice doctor, and rheumatologist so no one else has to be misdiagnosed and more will get treated appropriately.

  20. 4 out of 5

    Margaret Waterhouse

  21. 4 out of 5

    Maureen Allinson

  22. 4 out of 5

    Linda Brehmer

  23. 5 out of 5

    Joe Hokett

  24. 4 out of 5

    Penny Jeffrey

  25. 5 out of 5

    Susan

  26. 4 out of 5

    Charlene Symonds

  27. 5 out of 5

    Dolores

  28. 5 out of 5

    Christina Sell

  29. 5 out of 5

    Tjumonville

  30. 4 out of 5

    Donna Goddard

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